miércoles, 8 de enero de 2014

EURORDIS - The Voice of Rare Disease Patients in Europe

EURORDIS - The Voice of Rare Disease Patients in Europe


PATIENTS, ORGANISATIONS, SERVICES
Read about living with a rare disease and the services available
Learn about German adapted housing services for people with Prader-Willi syndrome run by Diakonische Stiftung Wittekindshof

 

List of services



Learn more about the Adapted Housing services indicated on the map: who can attend each service, how to contact the services and where they are located.

Bofællesskab Myrholmsvej Group Homes

Activities: Adapted residential facilities with supporting staff; residents are able to have occupational activities in different working places
Dates: All year long
Target Population: Patients; Prader-Willi Syndrome
Age-Groups: Adults (>18 years old)
Countries of Origin: Denmark
Languages Spoken: Danish; English
Country: Denmark
Contact Person: Jacob B Lindequist (leader)
Email: liboj@aarhus.dk
Telephone: (0045)40228401

 

Christian-Groh-Haus

Activities: Adapted residential facilities with supporting staff
Dates: All year long
Target Population: Patients; mental and/or physical disabilities
Age-Groups: 25 to 70 years old
Countries of Origin: Germany
Languages Spoken: German
Country: Germany
Webpage: http://www.zuhause-gmbh.de/wai1/showcontent.asp?ThemaID=43
Email: hacke@zuhause-gmbh.de
Telephone: (0040) 06129 4030
 

Diakonische Stiftung Wittekindshof

Activities: Group Homes
Dates: All year long
Target Population: Patients; Prader-Willi Syndrome and disabilities
Age-Groups: Children, Adolescents and Adults
Countries of Origin: Germany
Languages Spoken: German, English
Country: Germany
Contact Person: Norbert Hödebeck-Stuntebeck
Webpage: http://www.wittekindshof.de/pws
Email: norbert.hoedebeck-stuntebeck@wittekindshof.de
Telephone: (0049) (0 57 34) 61- 1288

Engbo Kerteminde hus A Group Homes

Kerteminde hus A Group Homes
Activities: Adapted residential facilities with supporting staff; residents are able to have occupational/professional activities at a workshop nearby
Dates: All year long
Target Population: Patients; Prader-Willi Syndrome
Age-Groups: Adults (>18 years old)
Countries of Origin: Denmark
Languages Spoken: Danish; English
Country: Denmark
Contact Person: Berit Kuhlmann (leader)
Webpage: www.handicapcenternordoestfyn.regionsyddanmark.dk
Email: berit.Kuhlmann@rsyd.dk
Telephone: (0045)99441211
(0045)30940777
 

Group Homes Latvia

Activities: Group Apartments (Homes) for Mentally Disabled People
Dates: All year long
Target Population: Patients; Rare Diseases, Chronic Mental Diseases (with
incapacity over 60%)
Age-Groups: Adults
Countries of Origin: Latvia
Languages Spoken: Latvian, Russian, German
Country: Latvia
Contact Person: Mrs. Elvīra Grabovska
Webpage: http://www.lm.gov.lv/
Email: elvira.grabovska@lm.gov.lv
Telephone: (00371) 67021671
 

Grankoglen Group Homes

Activities: Adapted residential facilities with supporting staff; residents are able to have occupational activities on set
Dates: All year long
Target Population: Patients; Prader-Willi Syndrome
Age-Groups: Adults and Young Adults
Countries of Origin: Denmark
Languages Spoken: Danish; English
Country: Denmark
Contact Person: Marianne Eskesen (leader)
Webpage:  www.grankoglen.dk 
Email: marianne.eskesen@ps.rm.dk
Telephone:  (0045)78477923
 

Group Homes - Municipal Department of Health and Care in the City of Bergen

Activities: Group Homes for Disabled People
Dates: All year long
Target Population: Patients, Rare Diseases, Chronic Diseases  
Age-Groups: Adults
Countries of Origin: Norway
Languages Spoken: Norwegian, English
Country: Norway
Contact Person: Ragnhild Øverland Arnesen, Information Departement, City of Bergen
Webpage: https://www.bergen.kommune.no/
Email: ragnhild.arnesen@bergen.kommune.no
Telephone: (0047) 48096709 - (0047) 55567441
 

Kirstinelund Group Homes

Activities: Adapted residential facilities with supporting staff; residents are able to have occupational activities at an handicraft workshop or at school
Dates: All year long
Target Population: Patients; Prader-Willi Syndrome
Age-Groups: Children; Teenagers (<10 br="" old="" years="">Countries of Origin: Denmark
Languages Spoken: Danish; English
Country: Denmark
Contact Person: Normann and Kirsten  Pedersen (leaders)
Webpage: www.pws-kirstinelund.dk
Email: kirsten@pws-kirstinelund.dk
Telephone: (0045) 24664375
 

Leitung Wohngemeinschaften - Promobil

Activities: Group homes
Dates: All year long
Target Population: Patients; Multiple Disabilities
Age-Groups: Adults
Countries of Origin: Germany
Languages Spoken: German
Country: Germany
Contact Person: Anke Walther
Webpage: http://www.pmobil.de/wohnverbund.php
Email: a.walther@pmobil.de
Telephone: (0049) 02051 8090 53
 

Marienlund Group Homes

Activities: Adapted residential facilities with supporting staff; residents are able to have occupational activities taking care of horses and working at a shop on set
Dates: All year long
Target Population: Patients; Prader-Willi Syndrome
Age-Groups: Adults (>18 years old)
Countries of Origin: Denmark
Languages Spoken: Danish; English
Country: Denmark
Contact Person: Birthe Rasmussen
Telephone: (0045)54713503
(0045)24263503
 

Name of Service: Orionvej 60 Group Homes

Activities: Adapted residential facilities with supporting staff; residents are able to have occupational activities working at a workshop on set
Dates: All year long
Target Population: Patients; Prader-Willi Syndrome
Age-Groups: Adults (>18 years old)
Countries of Origin: Denmark
Languages Spoken: Danish; English
Country: Denmark
Contact Person: Kirsten Mankof Heide (leader)
Email: kehei@naestved.dk
Telephone: (0045)30663089
 

Oxen Group Homes

Activities: Adapted residential facilities with supporting staff; residents are able to have occupational/professional activities nearby
Dates: All year long
Target Population: Patients; Prader-Willi Syndrome
Age-Groups: Adults (>18 years old)
Countries of Origin: Denmark
Languages Spoken: Danish; English
Country: Denmark
Contact Person: Ingvard Bækgaard Andersen (leader)
Webpage: www.oxen-botilbud.dk
Email: oxen@bbsyd.dk
Telephone:  (0045)74388388

Solvang Group Homes

Activities: Adapted residential facilities with supporting staff; residents are able to have occupational activities taking care of horses and working at a shop on set
Dates: All year long
Target Population: Patients; Prader-Willi Syndrome
Age-Groups: Adults (>18 years old)
Countries of Origin: Denmark
Languages Spoken: Danish; English
Country: Denmark
Contact Person: Karin Birkedal
Email: solvangfejoe@gmail.com
Telephone: (0045)54713304
(0045)30317320
 

Villa Brosius

Activities: Adapted residential facility barrier-free built and equipped for disabled guests, with supporting staff
Dates: All year long
Target Population: Patients; disabilities
Age-Groups: All ages
Countries of Origin: Germany
Languages Spoken: German
Country: Germany
Webpage: http://www.zuhause-gmbh.de/wai1/showcontent.asp?ThemaID=41
Email: vondergathen@zuhause-gmbh.de
Telephone: (0049) 06120 978805
Page created: 19/09/2012
Page last updated: 04/09/2013

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