miércoles, 27 de febrero de 2013

EURORDIS' news and events from the rare disease community

EURORDIS' news and events from the rare disease community

 

Eurordis, Rare Diseases Europe The voice of rare disease patients in Europe


EURORDIS Rare Disease Leadership Award 2013


EURORDIS Rare Disease Leadership Award 2013
The EURORDIS Awards recognise excellence in the field of rare diseases. Voted by the EURORDIS Board of Directors from over 100 nominations put forward by representatives of EURORDIS member organisations, volunteers and staff, the EURORDIS Awards promote leadership and achievement in the field of rare diseases. Distributed on the occasion of the sixth Rare Disease Day, the EURORDIS 2013 Awards acknowledge the outstanding contributions of patients' advocacy groups, volunteers, scientists, companies, media, and policy makers toward reducing the impact of rare diseases on people's lives.
Congratulations to all of this year’s winners!

Policy Maker Award MEP

Françoise Grossetête
EURORDIS Awards 2013

European Rare Disease Leadership Award

Dr Ruxandra Draghia-Akli
EURORDIS Awards 2013

Volunteer Award

Lesley Greene
EURORDIS Awards 2013

Scientific Award

Dr Ségolène Aymé
EURORDIS Awards 2013

Patient Organisation Award

Alstrom Syndrome UK
Received by Kay Parkinson
EURORDIS Awards 2013

Company Award

Celgene
EURORDIS Awards 2013

Company Award

Prosensa
EURORDIS Awards 2013

Company Award

Genzyme, a Sanofi Company
EURORDIS Awards 2013

Lifetime Achievement Award

Former First Lady of Germany, Mrs Eva Luise Kohler
EURORDIS Awards 2013

Page created: 25/02/2013
Page last updated: 27/02/2013

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